Yule Came Early This Year!

18 Dec

Every Yuletide wish I’ll ever make for the rest of my life was granted today at 11:00 a.m. EST when FedEx delivered 30 days worth of Cinryze to my front door.  The God, Goddess and All-In-One have truly blessed me and rewarded the past 12+ years of loaning my body to the scientific community for the purpose of research, development, test and evaluation of this very important contribution to the treatment of Hereditary Angio Edema.

I am so grateful to the people who helped to make this incredible dream come true:

  • Dr. Boyce Hornberger, my super-hero immunologist
  • Jackie Cooper, Dr. Hornberger’s super-incredible nurse
  • Anthony Castaldo, the HAE Association president
  • Donna Davis, the HAE Association patient coordinator
  • Shawney, my Cinryze Solutions case manager
  • Mary and Carol, my Theracom/CVS/Caremark case managers
  • Karen and Theresa, my PSI benefit coordinators

Karen, Theresa and I are still working on whether or not I’ll qualify for PSI’s assistance and I may be liable for up to $2,600 this year and another $5,000 in January (after which my health insurance will cover 100% of ALL my medical costs for the remainder of 2009!), but all-in-all I’m very hopeful.

I guess this is proof that I haven’t been nearly as wicked as I’ve always believed!

2 Responses to “Yule Came Early This Year!”

  1. Stacy December 19, 2008 at 9:51 AM #

    This is such wonderful news Kat! I am so happy and so relieved for you and in my opinion if anyone in the world is deserving of having their wishes come true – it’s you!

    *great big hugs!!!!!*

    • Faerie♥Kat December 19, 2008 at 2:47 PM #

      Thank you, dearest; you’re so sweet! I can’t start doing my own infusions
      quite yet; Dr. Hornberger and Jackie have to “drum” me out of the clinical
      study and have yet to get the “marching orders” on how to go about doing
      that, so I have to go in again next Tuesday — that may be my last day
      (sniffle, wipes away some tears) — I really am going to miss them — but
      I’ll be back for routine visits and scrip updates. I really feel like a
      little kid with a brand new bicycle, all giddy and anxious to get outside
      and start riding! PS: You send the nicest hugz!

      > [Original Message]

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