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	<title>Faerie♥Kat&#039;s Faerie♥Korner &#187; Hereditary Angio Edema</title>
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		<title>Faerie♥Kat&#039;s Faerie♥Korner &#187; Hereditary Angio Edema</title>
		<link>http://faeriekat.wordpress.com</link>
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		<item>
		<title>I Am Happily Self-Infused!</title>
		<link>http://faeriekat.wordpress.com/2008/12/23/i-am-happily-self-infused/</link>
		<comments>http://faeriekat.wordpress.com/2008/12/23/i-am-happily-self-infused/#comments</comments>
		<pubDate>Tue, 23 Dec 2008 23:17:38 +0000</pubDate>
		<dc:creator>Faerie♥Kat</dc:creator>
				<category><![CDATA[Cinryze]]></category>
		<category><![CDATA[HAE]]></category>
		<category><![CDATA[My Mundane Life]]></category>
		<category><![CDATA[Hereditary Angio Edema]]></category>

		<guid isPermaLink="false">http://faeriekat.wordpress.com/?p=2040</guid>
		<description><![CDATA[Jackie, my nurse, called this morning to let me know that I have officially been &#8220;drummed out&#8221; of the clinical drug trial and didn&#8217;t have to come into the office today for my Cinryze infusion.  Yeah!  So I needled up and did my first official Cinryze infusion myself at home.  Double yeah!  And promptly fell [...]<img alt="" border="0" src="http://stats.wordpress.com/b.gif?host=faeriekat.wordpress.com&blog=2200499&post=2040&subd=faeriekat&ref=&feed=1" />]]></description>
		<wfw:commentRss>http://faeriekat.wordpress.com/2008/12/23/i-am-happily-self-infused/feed/</wfw:commentRss>
		<slash:comments>2</slash:comments>
	
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			<media:title type="html">Digg!</media:title>
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	</item>
		<item>
		<title>Yule Came Early This Year!</title>
		<link>http://faeriekat.wordpress.com/2008/12/18/yule-came-early-this-year/</link>
		<comments>http://faeriekat.wordpress.com/2008/12/18/yule-came-early-this-year/#comments</comments>
		<pubDate>Fri, 19 Dec 2008 03:26:28 +0000</pubDate>
		<dc:creator>Faerie♥Kat</dc:creator>
				<category><![CDATA[Cinryze]]></category>
		<category><![CDATA[HAE]]></category>
		<category><![CDATA[My Mundane Life]]></category>
		<category><![CDATA[Hereditary Angio Edema]]></category>

		<guid isPermaLink="false">http://faeriekat.wordpress.com/?p=1990</guid>
		<description><![CDATA[Every Yuletide wish I&#8217;ll ever make for the rest of my life was granted today at 11:00 a.m. EST when FedEx delivered 30 days worth of Cinryze to my front door.  The God, Goddess and All-In-One have truly blessed me and rewarded the past 12+ years of loaning my body to the scientific community for [...]<img alt="" border="0" src="http://stats.wordpress.com/b.gif?host=faeriekat.wordpress.com&blog=2200499&post=1990&subd=faeriekat&ref=&feed=1" />]]></description>
		<wfw:commentRss>http://faeriekat.wordpress.com/2008/12/18/yule-came-early-this-year/feed/</wfw:commentRss>
		<slash:comments>2</slash:comments>
	
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			<media:title type="html">Faerie♥Kat</media:title>
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			<media:title type="html">Digg!</media:title>
		</media:content>

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		<item>
		<title>My Teeth-Brushing Takes a Bite of the Medical Profession</title>
		<link>http://faeriekat.wordpress.com/2008/12/09/my-teeth-brushing-takes-a-bite-of-the-medical-profession/</link>
		<comments>http://faeriekat.wordpress.com/2008/12/09/my-teeth-brushing-takes-a-bite-of-the-medical-profession/#comments</comments>
		<pubDate>Tue, 09 Dec 2008 21:58:36 +0000</pubDate>
		<dc:creator>Faerie♥Kat</dc:creator>
				<category><![CDATA[Causes]]></category>
		<category><![CDATA[HAE]]></category>
		<category><![CDATA[Health Care]]></category>
		<category><![CDATA[Philosophy]]></category>
		<category><![CDATA[Discovery Health]]></category>
		<category><![CDATA[Hereditary Angio Edema]]></category>
		<category><![CDATA[Medical Profession]]></category>
		<category><![CDATA[Mystery Diagnosis]]></category>

		<guid isPermaLink="false">http://faeriekat.wordpress.com/?p=1841</guid>
		<description><![CDATA[I finally had the opportunity to watch the episode of Mystery Diagnosis called “The Woman Who Couldn’t Stop Rocking” that included the story of Janet Long, who was finally diagnosed with Hereditary Angio Edema (HAE) after suffering horribly for 30 years.  I missed the first airing on December 1, but finally caught it on December [...]<img alt="" border="0" src="http://stats.wordpress.com/b.gif?host=faeriekat.wordpress.com&blog=2200499&post=1841&subd=faeriekat&ref=&feed=1" />]]></description>
		<wfw:commentRss>http://faeriekat.wordpress.com/2008/12/09/my-teeth-brushing-takes-a-bite-of-the-medical-profession/feed/</wfw:commentRss>
		<slash:comments>2</slash:comments>
	
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			<media:title type="html">Faerie♥Kat</media:title>
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			<media:title type="html">Digg!</media:title>
		</media:content>

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	</item>
		<item>
		<title>Mystery Diagnosis and HAE</title>
		<link>http://faeriekat.wordpress.com/2008/11/25/mystery-diagnosis-and-hae/</link>
		<comments>http://faeriekat.wordpress.com/2008/11/25/mystery-diagnosis-and-hae/#comments</comments>
		<pubDate>Tue, 25 Nov 2008 17:59:10 +0000</pubDate>
		<dc:creator>Faerie♥Kat</dc:creator>
				<category><![CDATA[HAE]]></category>
		<category><![CDATA[Discovery Health]]></category>
		<category><![CDATA[Hereditary Angio Edema]]></category>
		<category><![CDATA[Mystery Diagnosis]]></category>

		<guid isPermaLink="false">http://faeriekat.wordpress.com/?p=1794</guid>
		<description><![CDATA[On December 1, the Discovery Health channel will devote half of an episode of their program, Mystery Diagnosis, to the story of Janet Long&#8217;s 40 year long journey to being diagnosed with Hereditary Angio Edema (HAE).
The episode is called &#8220;The Woman Who Couldn&#8217;t Stop Rocking,&#8221; and the description reads as follows:
35 year old Rosanne Jensen [...]<img alt="" border="0" src="http://stats.wordpress.com/b.gif?host=faeriekat.wordpress.com&blog=2200499&post=1794&subd=faeriekat&ref=&feed=1" />]]></description>
		<wfw:commentRss>http://faeriekat.wordpress.com/2008/11/25/mystery-diagnosis-and-hae/feed/</wfw:commentRss>
		<slash:comments>3</slash:comments>
	
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			<media:title type="html">Faerie♥Kat</media:title>
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			<media:title type="html">Digg!</media:title>
		</media:content>

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		<item>
		<title>FDA Approves Cinryze</title>
		<link>http://faeriekat.wordpress.com/2008/10/10/fda-approves-cinryze/</link>
		<comments>http://faeriekat.wordpress.com/2008/10/10/fda-approves-cinryze/#comments</comments>
		<pubDate>Sat, 11 Oct 2008 01:45:30 +0000</pubDate>
		<dc:creator>Faerie♥Kat</dc:creator>
				<category><![CDATA[Cinryze]]></category>
		<category><![CDATA[HAE]]></category>
		<category><![CDATA[Hereditary Angio Edema]]></category>

		<guid isPermaLink="false">http://faeriekat.wordpress.com/?p=1441</guid>
		<description><![CDATA[The FDA announced today its approval of the C1 inhibitor treatment, Cinryze, for the prevention of Hereditary Angio Edema (HAE).
Now starts the battle to have insurance companies and Government entities like Medicare and Medicaid pay for this life saving product.
It is anticipated that it be will four to six weeks before the product becomes commerically [...]<img alt="" border="0" src="http://stats.wordpress.com/b.gif?host=faeriekat.wordpress.com&blog=2200499&post=1441&subd=faeriekat&ref=&feed=1" />]]></description>
		<wfw:commentRss>http://faeriekat.wordpress.com/2008/10/10/fda-approves-cinryze/feed/</wfw:commentRss>
		<slash:comments>5</slash:comments>
	
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			<media:title type="html">Faerie♥Kat</media:title>
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	</item>
		<item>
		<title>HAE Association&#8217;s 2008 National Patient Conference and International Leadership Forum</title>
		<link>http://faeriekat.wordpress.com/2008/09/19/haea-conference/</link>
		<comments>http://faeriekat.wordpress.com/2008/09/19/haea-conference/#comments</comments>
		<pubDate>Fri, 19 Sep 2008 18:05:25 +0000</pubDate>
		<dc:creator>Faerie♥Kat</dc:creator>
				<category><![CDATA[HAE]]></category>
		<category><![CDATA[Hereditary Angio Edema]]></category>

		<guid isPermaLink="false">http://faeriekat.wordpress.com/?p=1340</guid>
		<description><![CDATA[FDA approval of the world-wide gold standard treatment for Hereditary Angio Edema
&#8211; C1 Inhibitor concentrate [Cinryze] &#8211;
appears to be imminent [possibly by the 14th of October 2008]!
You will not want to miss the HAE Association&#8217;s
2008 National Patient Conference and International Leadership Forum
October 17 &#8211; 19
in Chicago, IL
Attend the Conference and

 Find out how this new [...]<img alt="" border="0" src="http://stats.wordpress.com/b.gif?host=faeriekat.wordpress.com&blog=2200499&post=1340&subd=faeriekat&ref=&feed=1" />]]></description>
		<wfw:commentRss>http://faeriekat.wordpress.com/2008/09/19/haea-conference/feed/</wfw:commentRss>
		<slash:comments>1</slash:comments>
	
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			<media:title type="html">Digg!</media:title>
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		<item>
		<title>Family and Medical Leave Act (Especially Important for HAE Sufferors)</title>
		<link>http://faeriekat.wordpress.com/2008/02/16/family-and-medical-leave-act-especially-important-for-hae-sufferors/</link>
		<comments>http://faeriekat.wordpress.com/2008/02/16/family-and-medical-leave-act-especially-important-for-hae-sufferors/#comments</comments>
		<pubDate>Sat, 16 Feb 2008 17:32:55 +0000</pubDate>
		<dc:creator>Faerie♥Kat</dc:creator>
				<category><![CDATA[HAE]]></category>
		<category><![CDATA[FMLA]]></category>
		<category><![CDATA[Hereditary Angio Edema]]></category>

		<guid isPermaLink="false">http://faeriekat.wordpress.com/?p=821</guid>
		<description><![CDATA[If your company employs more than 50 people, you may be covered by the Family and Medical Leave Act (FMLA):
Synopsis of Act
Covered employers* must grant an eligible employee** up to a total of 12 workweeks of unpaid leave during any 12-month period for one or more of the following reasons:

for the birth and care of [...]<img alt="" border="0" src="http://stats.wordpress.com/b.gif?host=faeriekat.wordpress.com&blog=2200499&post=821&subd=faeriekat&ref=&feed=1" />]]></description>
		<wfw:commentRss>http://faeriekat.wordpress.com/2008/02/16/family-and-medical-leave-act-especially-important-for-hae-sufferors/feed/</wfw:commentRss>
		<slash:comments>1</slash:comments>
	
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			<media:title type="html">Faerie♥Kat</media:title>
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			<media:title type="html">Digg!</media:title>
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		<item>
		<title>Delay In FDA Approval for HAE Treatment</title>
		<link>http://faeriekat.wordpress.com/2008/01/31/delay-in-fda-approval-for-hae-treatment/</link>
		<comments>http://faeriekat.wordpress.com/2008/01/31/delay-in-fda-approval-for-hae-treatment/#comments</comments>
		<pubDate>Fri, 01 Feb 2008 02:03:59 +0000</pubDate>
		<dc:creator>Faerie♥Kat</dc:creator>
				<category><![CDATA[HAE]]></category>
		<category><![CDATA[C1 Inhibitor]]></category>
		<category><![CDATA[Cinryze]]></category>
		<category><![CDATA[Hereditary Angio Edema]]></category>
		<category><![CDATA[Lev Pharma]]></category>

		<guid isPermaLink="false">http://faeriekat.wordpress.com/?p=695</guid>
		<description><![CDATA[FDA approval of Cinryze, the Lev Pharma C1 Inhibitor concentrate currently undergoing drug trials here in the US, was originally anticipated for early 2008.  That anticipated approval has now been moved to sometime in the June 2008 time frame.  I&#8217;ve been participating in drug trials for this type of treatment (C1 INH) since [...]<img alt="" border="0" src="http://stats.wordpress.com/b.gif?host=faeriekat.wordpress.com&blog=2200499&post=695&subd=faeriekat&ref=&feed=1" />]]></description>
		<wfw:commentRss>http://faeriekat.wordpress.com/2008/01/31/delay-in-fda-approval-for-hae-treatment/feed/</wfw:commentRss>
		<slash:comments>0</slash:comments>
	
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			<media:title type="html">Digg!</media:title>
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		<title>Lev Pharma Seeks Solutions for HAE Sufferors</title>
		<link>http://faeriekat.wordpress.com/2008/01/17/lev-pharma-seeks-solutions-for-hae-sufferors/</link>
		<comments>http://faeriekat.wordpress.com/2008/01/17/lev-pharma-seeks-solutions-for-hae-sufferors/#comments</comments>
		<pubDate>Thu, 17 Jan 2008 14:31:14 +0000</pubDate>
		<dc:creator>Faerie♥Kat</dc:creator>
				<category><![CDATA[HAE]]></category>
		<category><![CDATA[Hereditary Angio Edema]]></category>

		<guid isPermaLink="false">http://faeriekat.wordpress.com/2008/01/17/lev-pharma-seeks-solutions-for-hae-sufferors/</guid>
		<description><![CDATA[LEV PHARMACEUTICALS
Hereditary Angioedema
Background
Hereditary angioedema (HAE) is a genetic disorder characterized by episodes of edema (swelling) in the extremeties (hands and feet), face, gastrointestinal tract and airway passages. The majority of patients experience periods of severe abdominal pain, nausea and vomiting caused by swelling in the intestinal wall.
Attacks that involve the face and throat can result [...]<img alt="" border="0" src="http://stats.wordpress.com/b.gif?host=faeriekat.wordpress.com&blog=2200499&post=613&subd=faeriekat&ref=&feed=1" />]]></description>
		<wfw:commentRss>http://faeriekat.wordpress.com/2008/01/17/lev-pharma-seeks-solutions-for-hae-sufferors/feed/</wfw:commentRss>
		<slash:comments>0</slash:comments>
	
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		<item>
		<title>Hereditary Angio Edema (HAE)</title>
		<link>http://faeriekat.wordpress.com/2008/01/17/hereditary-angio-edema-hae/</link>
		<comments>http://faeriekat.wordpress.com/2008/01/17/hereditary-angio-edema-hae/#comments</comments>
		<pubDate>Thu, 17 Jan 2008 05:38:05 +0000</pubDate>
		<dc:creator>Faerie♥Kat</dc:creator>
				<category><![CDATA[HAE]]></category>
		<category><![CDATA[Hereditary Angio Edema]]></category>

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