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	<title>Faerie♥Kat&#039;s Faerie♥Korner &#187; Cinryze</title>
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	<link>http://faeriekat.wordpress.com</link>
	<description>Where ♥Faeries♥ and Those Who ♥Believe♥ Learn to Live and Live to Learn</description>
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		<title>Faerie♥Kat&#039;s Faerie♥Korner &#187; Cinryze</title>
		<link>http://faeriekat.wordpress.com</link>
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		<item>
		<title>Second C1 Inhibitor Treatment Approved for HAE</title>
		<link>http://faeriekat.wordpress.com/2009/10/11/second-c1-inhibitor-treatment-approved-for-hae/</link>
		<comments>http://faeriekat.wordpress.com/2009/10/11/second-c1-inhibitor-treatment-approved-for-hae/#comments</comments>
		<pubDate>Mon, 12 Oct 2009 03:37:00 +0000</pubDate>
		<dc:creator>Faerie♥Kat</dc:creator>
				<category><![CDATA[Berinert]]></category>
		<category><![CDATA[Cinryze]]></category>
		<category><![CDATA[HAE]]></category>

		<guid isPermaLink="false">http://faeriekat.wordpress.com/2009/10/12/second-c1-inhibitor-treatment-approved-for-hae/</guid>
		<description><![CDATA[The FDA released this statement on October 9th:
The U.S. Food and Drug Administration today approved Berinert, the first treatment for acute abdominal attacks and facial swelling associated with a rare and potentially life-threatening genetic disease called hereditary angioedema (HAE).
Berinert is approved for adults and adolescents with HAE, which can occur spontaneously or during stress, surgery, [...]<img alt="" border="0" src="http://stats.wordpress.com/b.gif?host=faeriekat.wordpress.com&blog=2200499&post=4117&subd=faeriekat&ref=&feed=1" />]]></description>
		<wfw:commentRss>http://faeriekat.wordpress.com/2009/10/11/second-c1-inhibitor-treatment-approved-for-hae/feed/</wfw:commentRss>
		<slash:comments>1</slash:comments>
	
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			<media:title type="html">Faerie♥Kat</media:title>
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		<item>
		<title>Health Update</title>
		<link>http://faeriekat.wordpress.com/2009/08/05/health-update/</link>
		<comments>http://faeriekat.wordpress.com/2009/08/05/health-update/#comments</comments>
		<pubDate>Wed, 05 Aug 2009 23:08:56 +0000</pubDate>
		<dc:creator>Faerie♥Kat</dc:creator>
				<category><![CDATA[Cinryze]]></category>
		<category><![CDATA[HAE]]></category>
		<category><![CDATA[My Mundane Life]]></category>
		<category><![CDATA[Kidney Damage]]></category>

		<guid isPermaLink="false">http://faeriekat.wordpress.com/2009/08/05/health-update/</guid>
		<description><![CDATA[
I saw my new nephrologist today to find out the results of the blood tests he ordered last week.
Although he is not worried that Cinryze is any danger to me and this may be what is “normal” for me, my kidneys are only working at 60%.  However, “normal” for my age group is 90%.  Not [...]<img alt="" border="0" src="http://stats.wordpress.com/b.gif?host=faeriekat.wordpress.com&blog=2200499&post=3511&subd=faeriekat&ref=&feed=1" />]]></description>
		<wfw:commentRss>http://faeriekat.wordpress.com/2009/08/05/health-update/feed/</wfw:commentRss>
		<slash:comments>13</slash:comments>
	
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			<media:title type="html">Faerie♥Kat</media:title>
		</media:content>

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			<media:title type="html">sidney_kidney2</media:title>
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		<item>
		<title>Perfect Proof &#8212; Just Not the Booze Kind!</title>
		<link>http://faeriekat.wordpress.com/2009/06/03/perfect-proof-just-not-the-booze-kind/</link>
		<comments>http://faeriekat.wordpress.com/2009/06/03/perfect-proof-just-not-the-booze-kind/#comments</comments>
		<pubDate>Thu, 04 Jun 2009 00:33:08 +0000</pubDate>
		<dc:creator>Faerie♥Kat</dc:creator>
				<category><![CDATA[Cinryze]]></category>
		<category><![CDATA[HAE]]></category>
		<category><![CDATA[My Mundane Life]]></category>
		<category><![CDATA[Religion]]></category>
		<category><![CDATA[Spells]]></category>
		<category><![CDATA[The Craft]]></category>
		<category><![CDATA[Witchcraft]]></category>
		<category><![CDATA[Witchcraft/Wicca]]></category>
		<category><![CDATA[Kidney Disease]]></category>
		<category><![CDATA[Magic]]></category>

		<guid isPermaLink="false">http://faeriekat.wordpress.com/2009/06/03/perfect-proof-just-not-the-booze-kind/</guid>
		<description><![CDATA[For those of you who have had the tenacity to follow the trials and tribulations of my most recent health crisis here on my blog, you know that two blood tests showed that I had recently developed kidney damage.  This finding not only semi-ruined my enjoyment of my step-mother&#8217;s remarriage and my visit with my [...]<img alt="" border="0" src="http://stats.wordpress.com/b.gif?host=faeriekat.wordpress.com&blog=2200499&post=3263&subd=faeriekat&ref=&feed=1" />]]></description>
		<wfw:commentRss>http://faeriekat.wordpress.com/2009/06/03/perfect-proof-just-not-the-booze-kind/feed/</wfw:commentRss>
		<slash:comments>10</slash:comments>
	
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			<media:title type="html">Faerie♥Kat</media:title>
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			<media:title type="html">Kiss</media:title>
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		<item>
		<title>And That&#8217;s When the Iceberg Showed Up&#8230;</title>
		<link>http://faeriekat.wordpress.com/2009/05/07/and-thats-when-the-iceberg-showed-up/</link>
		<comments>http://faeriekat.wordpress.com/2009/05/07/and-thats-when-the-iceberg-showed-up/#comments</comments>
		<pubDate>Thu, 07 May 2009 22:10:22 +0000</pubDate>
		<dc:creator>Faerie♥Kat</dc:creator>
				<category><![CDATA[Cinryze]]></category>
		<category><![CDATA[HAE]]></category>
		<category><![CDATA[My Mundane Life]]></category>
		<category><![CDATA[Kidney Disease]]></category>

		<guid isPermaLink="false">http://faeriekat.wordpress.com/2009/05/07/and-thats-when-the-iceberg-showed-up/</guid>
		<description><![CDATA[Dear Friends
Yesterday I found out that there was a possibility that either (1) I had been dehydrated last week when they drew blood or (2) my kidneys have been damaged and are not working properly.  Results of a repeat test came back today and ruled out dehydration as the cause of the high level of [...]<img alt="" border="0" src="http://stats.wordpress.com/b.gif?host=faeriekat.wordpress.com&blog=2200499&post=3212&subd=faeriekat&ref=&feed=1" />]]></description>
		<wfw:commentRss>http://faeriekat.wordpress.com/2009/05/07/and-thats-when-the-iceberg-showed-up/feed/</wfw:commentRss>
		<slash:comments>23</slash:comments>
	
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			<media:title type="html">Faerie♥Kat</media:title>
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		<item>
		<title>And Then a Truck Ran Me Over&#8230;</title>
		<link>http://faeriekat.wordpress.com/2009/04/30/and-then-a-truck-ran-me-over/</link>
		<comments>http://faeriekat.wordpress.com/2009/04/30/and-then-a-truck-ran-me-over/#comments</comments>
		<pubDate>Fri, 01 May 2009 01:42:54 +0000</pubDate>
		<dc:creator>Faerie♥Kat</dc:creator>
				<category><![CDATA[Cinryze]]></category>
		<category><![CDATA[HAE]]></category>
		<category><![CDATA[My Mundane Life]]></category>

		<guid isPermaLink="false">http://faeriekat.wordpress.com/2009/04/30/and-then-the-truck-ran-me-over/</guid>
		<description><![CDATA[I received a call from my immunologist&#8217;s office two days ago, Tuesday, at noon.  He ordered me to immediately cease giving myself one dose of Cinryze every other day, which I have been doing since mid-January of this year, and to go to a schedule of one dose every three days because this is what [...]<img alt="" border="0" src="http://stats.wordpress.com/b.gif?host=faeriekat.wordpress.com&blog=2200499&post=3196&subd=faeriekat&ref=&feed=1" />]]></description>
		<wfw:commentRss>http://faeriekat.wordpress.com/2009/04/30/and-then-a-truck-ran-me-over/feed/</wfw:commentRss>
		<slash:comments>8</slash:comments>
	
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			<media:title type="html">Faerie♥Kat</media:title>
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		<item>
		<title>Traveling with Cinryze &#8211; Research Update</title>
		<link>http://faeriekat.wordpress.com/2009/04/17/traveling-with-research-update/</link>
		<comments>http://faeriekat.wordpress.com/2009/04/17/traveling-with-research-update/#comments</comments>
		<pubDate>Fri, 17 Apr 2009 23:13:34 +0000</pubDate>
		<dc:creator>Faerie♥Kat</dc:creator>
				<category><![CDATA[Cinryze]]></category>
		<category><![CDATA[HAE]]></category>

		<guid isPermaLink="false">http://faeriekat.wordpress.com/?p=3088</guid>
		<description><![CDATA[Here are the results of my research so far into traveling with Cinryze, as previously promised:
First, my specialty pharmacy (CareMark) case manager confessed they are unable to provide a &#8220;travel kit&#8221; because they are waiting for it to be provided by &#8220;the manufacturer.&#8221;  Foolishly, I assumed the manufacturer to be ViroPharma and only realized later [...]<img alt="" border="0" src="http://stats.wordpress.com/b.gif?host=faeriekat.wordpress.com&blog=2200499&post=3088&subd=faeriekat&ref=&feed=1" />]]></description>
		<wfw:commentRss>http://faeriekat.wordpress.com/2009/04/17/traveling-with-research-update/feed/</wfw:commentRss>
		<slash:comments>0</slash:comments>
	
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			<media:title type="html">Faerie♥Kat</media:title>
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		<item>
		<title>Traveling with Cinryze</title>
		<link>http://faeriekat.wordpress.com/2009/04/11/traveling-with-cinryze/</link>
		<comments>http://faeriekat.wordpress.com/2009/04/11/traveling-with-cinryze/#comments</comments>
		<pubDate>Sun, 12 Apr 2009 00:42:46 +0000</pubDate>
		<dc:creator>Faerie♥Kat</dc:creator>
				<category><![CDATA[Cinryze]]></category>
		<category><![CDATA[HAE]]></category>

		<guid isPermaLink="false">http://faeriekat.wordpress.com/2009/04/11/traveling-with-cinryze/</guid>
		<description><![CDATA[One of the things your Cinryze specialty pharmacy can provide is assistance on how to travel with Cinryze.
Although I haven&#8217;t yet availed myself of this service, I intend to do so for my first extended trip in five years coming up this May (hello Las Vegas!).
My understanding is they will provide you with a &#8220;traveling [...]<img alt="" border="0" src="http://stats.wordpress.com/b.gif?host=faeriekat.wordpress.com&blog=2200499&post=3005&subd=faeriekat&ref=&feed=1" />]]></description>
		<wfw:commentRss>http://faeriekat.wordpress.com/2009/04/11/traveling-with-cinryze/feed/</wfw:commentRss>
		<slash:comments>4</slash:comments>
	
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			<media:title type="html">Faerie♥Kat</media:title>
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		<item>
		<title>Why is Cinryze So Expensive? &#8212; Correction</title>
		<link>http://faeriekat.wordpress.com/2009/01/22/why-is-cinryze-so-expensive-correction/</link>
		<comments>http://faeriekat.wordpress.com/2009/01/22/why-is-cinryze-so-expensive-correction/#comments</comments>
		<pubDate>Thu, 22 Jan 2009 15:27:49 +0000</pubDate>
		<dc:creator>Faerie♥Kat</dc:creator>
				<category><![CDATA[Cinryze]]></category>
		<category><![CDATA[HAE]]></category>
		<category><![CDATA[Berinert P]]></category>
		<category><![CDATA[Cetor]]></category>

		<guid isPermaLink="false">http://faeriekat.wordpress.com/?p=2245</guid>
		<description><![CDATA[When I&#8217;m wrong, I&#8217;m wrong, and I&#8217;m not afraid to tell the world.
I managed to get myself, and quite a few other people, confused when I inadvertently misidentified the specific C1 Inhibitor products in my post and digest entitled, &#8220;Why is Cinryze So Expensive?&#8221;  Hey, it happens, and so does fixing one&#8217;s mistakes.
First, I want [...]<img alt="" border="0" src="http://stats.wordpress.com/b.gif?host=faeriekat.wordpress.com&blog=2200499&post=2245&subd=faeriekat&ref=&feed=1" />]]></description>
		<wfw:commentRss>http://faeriekat.wordpress.com/2009/01/22/why-is-cinryze-so-expensive-correction/feed/</wfw:commentRss>
		<slash:comments>3</slash:comments>
	
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			<media:title type="html">Faerie♥Kat</media:title>
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		<item>
		<title>More to Cinryze Than Meets the Eye</title>
		<link>http://faeriekat.wordpress.com/2009/01/13/more-to-cinryze-than-meets-the-eye/</link>
		<comments>http://faeriekat.wordpress.com/2009/01/13/more-to-cinryze-than-meets-the-eye/#comments</comments>
		<pubDate>Tue, 13 Jan 2009 19:13:57 +0000</pubDate>
		<dc:creator>Faerie♥Kat</dc:creator>
				<category><![CDATA[Cinryze]]></category>
		<category><![CDATA[HAE]]></category>

		<guid isPermaLink="false">http://faeriekat.wordpress.com/?p=2185</guid>
		<description><![CDATA[I received my second shipment of Cinryze today and I have more information and tips to share.
Unlike my first shipment, where the prescription label on the plastic bag encasing each dose (two vials in individual manufacturer&#8217;s boxes) of Cinryze read, &#8220;Store at Room Temperature,&#8221; this shipment arrived in a cardboard box with an &#8220;Immediately Refrigerate&#8221; [...]<img alt="" border="0" src="http://stats.wordpress.com/b.gif?host=faeriekat.wordpress.com&blog=2200499&post=2185&subd=faeriekat&ref=&feed=1" />]]></description>
		<wfw:commentRss>http://faeriekat.wordpress.com/2009/01/13/more-to-cinryze-than-meets-the-eye/feed/</wfw:commentRss>
		<slash:comments>0</slash:comments>
	
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			<media:title type="html">Faerie♥Kat</media:title>
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		<item>
		<title>Why is Cinryze So Expensive?</title>
		<link>http://faeriekat.wordpress.com/2009/01/12/why-is-cinryze-so-expensive/</link>
		<comments>http://faeriekat.wordpress.com/2009/01/12/why-is-cinryze-so-expensive/#comments</comments>
		<pubDate>Mon, 12 Jan 2009 05:15:36 +0000</pubDate>
		<dc:creator>Faerie♥Kat</dc:creator>
				<category><![CDATA[Cinryze]]></category>
		<category><![CDATA[HAE]]></category>
		<category><![CDATA[Berinert P]]></category>
		<category><![CDATA[Cetor]]></category>

		<guid isPermaLink="false">http://faeriekat.wordpress.com/?p=2176</guid>
		<description><![CDATA[In the past, when HAE patients imported C1 Inhibitor from overseas, the product they imported was Berinert P under the FDA&#8217;s Personal Importation Policy.  LevPharma (now ViroPharma) funded and imported Cetor® during its Cinryze clinical trials for compassionate use by participants in emergency situations.  Cinryze has never been imported from Europe by HAE patients and [...]<img alt="" border="0" src="http://stats.wordpress.com/b.gif?host=faeriekat.wordpress.com&blog=2200499&post=2176&subd=faeriekat&ref=&feed=1" />]]></description>
		<wfw:commentRss>http://faeriekat.wordpress.com/2009/01/12/why-is-cinryze-so-expensive/feed/</wfw:commentRss>
		<slash:comments>0</slash:comments>
	
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