Kayla the Wonder Baby is Now the Wonder Angel

Julie and Jason Weber’s beautiful daughter Kayla battled one of the worst forms of childhood cancer – Stage 4 Neuroblastoma. She lost her battle on the 2nd of December, 2007; she was only 15 months old.

Kayla’s Journey

A few days before Christmas 2006, Julie & Jason are given the devastating news that their baby has cancer, Neuroblastoma Stage 4S. Kayla is just shy of 4 months old.

On December 26th 2006, the day after her first Christmas, Kayla is admitted to Children’s Hospital in Denver, where she will embark on a grueling journey of tests, surgeries and chemotherapy.

Kayla fights like the bravest little girl and there are times when things look bleak, yet amazingly this little warrior princess pulls through time and time again, humbling all of us that follow her story, that there must be a divine power watching over her. After 6 weeks in the Hospital Julie and Jason take their beautiful daughter home again!

Life is good. Julie quits her job to care for Kayla full time. Kayla has lots of catching up to do with her other baby friends. Rolling, sitting up, crawling, standing. She even gets to take that postponed Christmas trip to Maryland.

Julie begins preparing for a huge milestone, Kayla’s FIRST birthday!! We are sure there are times when Julie and Jason never thought they would see this day.

Suddenly, Kayla begins to not feel well; she is cranky and refuses food. Julie worries, but we all assure her it was nothing to worry about, that all of our babies are teething. Even Kayla’s own doctor at her check up feels it is not cancer related, more likely a stomach bug.

Sadly this is not to the case with Kayla. On Monday July 24th, acting on mother’s instinct Julie takes Kayla back to Children’s Hospital in Denver to be evaluated. It was then that she and Jason are yet again given the news that the cancer had returned, and this time the cancer meant business. It has not only returned in her abdomen but metastasized to both her lungs and her bone marrow. She is officially a Stage 4 cancer patient. Kayla is 11 months old.

Julie describes it simply as “we seriously feel like we are in a living nightmare”

We are a group of women who came together for the most joyous moment of our lives, the birth of our babies. Yet today we stand together to support Julie, Jason and Kayla in any way we can. This website is to get the word out there and raise awareness of Pediatric Cancers and the need for more research and a cure. Kayla could be any of our children, we are so blessed.

We can only imagine the emotional toll on the Webers this is and we pray we never know their pain first hand. But there is also a financial toll. Julie and Jason are young, Kayla is their first and only child, and they want to spend every moment by her side. Jason is a student and works in construction. They are living on only Jason’s salary and while they do have medical insurance the day to day expenses of gas, meals, coffee let alone their household expenses is overwhelming.

Please join us in the fight to cure Kayla.

Kayla’s Obituary

Kayla Evelyn Weber left this world to join Jesus in Heaven on December 2, 2007 at 2:53 AM MST.

Kayla was born August 30, 2006 in Colorado Springs. She is survived by her parents Jason and Julie Weber and Uncle David of Colorado Springs, her Grandparents Bill and Chris Weber of Pueblo West, Colorado, her Aunt Shannon of Pikeville, North Carolina, her Grandparents Ronald and Linda Jones and Aunts Karen, Kelly and Jenny of Baltimore, Maryland. She is also survived by thousands of other friends and family members – some who knew her personally and some who didn’t even need to meet her, but felt her presence and the strength and love she possessed all the same.

Just before Kayla reached four months old, she was diagnosed with Neuroblastoma, a childhood cancer that presented as tumors throughout her abdomen and continued to grow over time. Kayla battled this dreadful disease for one year. She did so with such courage, such strength and the utmost of grace. She had a smile on her face at all times and her passion was to make others smile as well. She enjoyed playing peek-a-boo and messing around with her dogs, Tyson and Roxy. She loved walking down the hospital halls with her little red wagon, waving and blowing kisses to the other patients and nurses. She especially loved playing in her little kitchen and baking cookies for Mommy. She loved to head-butt with Daddy and give him wet kisses and high fives. Her hugs were the best and she always knew just when you needed one the most. We need one now Baby Kayla because you have left us all with a void in our hearts that will never again be whole. Kayla passed peacefully at the Children’s Hospital in Denver, continuing to fight with her last breaths. Kayla is a true blessing to all who knew her.

Kayla did not beat cancer in her lifetime, but her family is determined to continue the fight. In lieu of flowers, they ask that donations be sent to The Kayla Weber Believe Foundation, PO Box 26652, Colorado Springs, CO 80936-6652. This foundation will aid in childhood cancer awareness and research as well as assist other families affected by this devastating disease. To follow the development of this Foundation and experience more of Kayla’s divine presence on this Earth, please visit Kayla the Wonder Angel is Flying High MySpace Website.

Services [were held] Thursday, December 6, 2007 with a public viewing from 1:00 – 3:00 pm and a Celebration of Her Life immediately following. Services [were] held at Woodmen Valley Chapel Worship Center, 290 E. Woodmen Rd., Colorado Springs, CO 80919. We will have childcare provided in the reception room. All who loved her are welcome and encouraged to attend.

“While we try to teach our children about life, our children teach us what life is all about”

This is Kayla’s amazing memorial slideshow that Julie made the night before Kayla’s service. It’s a perfect tribute to the most perfect little girl there ever was!

Please help support “Team Kayla,” an “e-roots” lobbying effort whose sole purpose is to educate our representatives in Washington on the critical importance of passing the Conquer Childhood Cancer Act of 2007.